Wed, 8 March 2006 I know it's been a while. I've had a few difficult weeks.
In this very emotional episode, I discuss the philosophy of pain. Comments[2] |
I can empathize with your need to either be fully able bodied or accepted as a person with a disability.
Take heart! Thank you for doing this.
One day we will all be well.
Take heart! Thank you for doing this.
One day we will all be well.
posted by: Rebekah on Thu, 3/9 10:02 AM EST
I can hear it in your voice. Pain relief is a major issue for us. I do understand your fear of asking for more relief. I have RA & FMS combined, my RA is improving - its close to remission - my fibromyalgia pain however, has been increasing month by month as of late. Wax cycle? Maybe. So I'm already taking MScontin, a moderate dose, been on the same dose at this point a year and a half. Its a fairly substantial pain reliever, but its not working as well as it used to for me - getting less relief month by month, more flares, longer flares, and some of the cognitive impairment is returning from fibromyalgia. So I ask my doc to increase it, not much, just take it up 50%. To me this seems a rational thing. Up to this point, I had 4 month appointments with my GP, and just phoned back in to pick up CII's. Now that I brought this up? Monthly appointments, accused of bring a drug addict, sent to a different rheumatologist for "another confirmatory" diagnosis. I can understand his POV to a point - he was thinking RA = pain problem. But I've been telling him the RA pain is minor for years, its the Fibro that is the main pain relief need.
I ended up having to fire the GP over this, and move on to the different one. I hope the new one will be helpful to me, but I don't know. I'm taking a risk. Scared I'll lose the pain relief I had. The issue for me wasn't about getting pain free, it was simply trying to hang on to the ground that I have gained. '
I envy that you can still work, I can't. I don't know how you find it to do that, but I know when you talk about being wiped out when you get home and the house ...I know exactly what you mean. It was that way for me the last few months I kept working, and finally the camels back broke and I couldn't do it anymore. I was making mistakes, and with what I did for a living - those mistakes could kill others, I just couldn't concentrate anymore.
You ever need to talk about it, got my email. I've been there and it sucks.
I ended up having to fire the GP over this, and move on to the different one. I hope the new one will be helpful to me, but I don't know. I'm taking a risk. Scared I'll lose the pain relief I had. The issue for me wasn't about getting pain free, it was simply trying to hang on to the ground that I have gained. '
I envy that you can still work, I can't. I don't know how you find it to do that, but I know when you talk about being wiped out when you get home and the house ...I know exactly what you mean. It was that way for me the last few months I kept working, and finally the camels back broke and I couldn't do it anymore. I was making mistakes, and with what I did for a living - those mistakes could kill others, I just couldn't concentrate anymore.
You ever need to talk about it, got my email. I've been there and it sucks.
posted by: SacredSalt on Mon, 7/3 09:46 PM EDT
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